Creative expression through the written word

Observations from the Field

I am part of many Alzheimer’s support groups online and I have realized that although the groups are priceless in making you realize that you are not alone in dealing with the issues of Alzheimer’s, they can breed a culture where your darkest thoughts are agreed with and confirmed when you should be finding people to uplift you.

Just an observation…..after reading a few posts in the groups lately…..
This disease takes so much from those effected by it but what makes me really sad is how much it strips the caregivers/family members of who they are and leaves them cynical and angry with a F___ you attitude….most often towards other loved ones they feel have neglected or abandoned them to do all the caregiving or neglected and abandoned the loved one in question.

This disease strips our loved ones from us in an agonizingly slow process and strips us as the caregivers, of our faith, our sense of connection to humanity, to our community, to those we called family and friends. It’s absolutely heartbreaking. It’s why I am grateful there is a place like the online groups where people can be heard, felt they are understood and definitely feel supported and not alone but the lull of also being supported in dark thinking, negativity and self-righteousness are there too.

I don’t claim to have answers. I have crappy days where I hate the whole damn world and this disease even more but I hope that when I speak up in these groups it is always to love, support and remind others that they matter. They are not alone and that whenever possible to not let this disease steal more from them than the person in their life who has it.

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